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- Psychosocial outcomes in young adults with cancer: emotional distress, quality of life and personal growthPublication . Monteiro, Sara; Torres, Ana; Morgadinho, Rita; Pereira, AnabelaThis study aimed at assessing the psychosocial adjustment, specifically the emotional distress, quality of life (QOL) and personal growth, in a sample of 36 Portuguese young adults with cancer and 435 healthy controls. Cancer patients scored significantly lower than controls in the role, cognitive and social domains of QOL and in personal growth. Cancer patients scored significantly lower than off-treatment survivors in the role domain of QOL and personal growth. Cancer patients revealed QOL and personal growth difficulties. These issues need to be considered in the psychosocial intervention within adolescents and young adults' oncology care.
- Quality of life in caregivers of patients with multiple myelomaPublication . Pereira, M. Graça; Vilaça, Margarida; Pinheiro, Marisa; Ferreira, Gabriela; Pereira, Marta; Faria, Sara; Monteiro, Sara; Bacalhau, RosárioObjectives: This study aimed to assess the relationship between sociodemographic, clinical, and psychological variables with quality of life (QoL) and the moderating role of caregivers’ age and caregiving duration in caregivers of patients with Multiple Myeloma. Method: The sample included 118 caregivers who completed questionnaires that assessed psychological morbidity, satisfaction with social support, coping, burden, unmet needs, and QoL. Results: High psychological morbidity, burden and information, financial and emotional unmet needs were associated with lower QoL, while higher satisfaction with social support and more effective use of coping strategies were associated with better QoL. Women caregivers reported more satisfaction with social support and those who did not choose to care reported greater financial unmet needs and more use of coping strategies. The relationship between caregivers’ psychological morbidity/social support and QoL was mediated by emotional needs and double mediated by coping and burden. The caregivers’ age moderated the relationship between psychological morbidity/social support and emotional needs. Conclusion: Interventions to support the caregiver’s emotional needs to promote their QoL are needed. These should be particularly tailored for older caregivers reporting greater psychological morbidity and younger caregivers less satisfied with their social support, as they have a negative indirect impact on their QoL.
- Effectiveness of psycho-educational interventions with telecommunication technologies on emotional distress and quality of life of adult cancer patients: a systematic reviewPublication . Bártolo, Ana; Pacheco, Emelda; Rodrigues, Fabiana; Pereira, Anabela; Monteiro, Sara; Santos, Isabel M.Purpose: To provide a comprehensive review of psycho-educational interventions using telecommunication technologies developed for adult cancer patients, assessing their effectiveness in reducing emotional distress and improving quality of life (QoL). Materials and methods: A narrative approach was used for extraction and synthesis of the data. Relevant studies were identified through the electronic databases PubMed, Scopus, Web of Science, ProQuest, Psychology & Behavioral Sciences Collection (through EBSCOhost), and CENTRAL. Results: Eight studies involving 1016 participants met inclusion criteria. The majority of the studies included (n¼6) used a randomized design and were published between 2007 and 2016. Interventions used a variety of delivery resources, such as telephone, e-mail and websites, but all were aiming to respond to information needs and develop stress control skills. A trend toward reducing distress and improving QoL was found, but estimated effect sizes were typically small (d<0.5). Telephonically delivered psycho-educational interventions presented the highest between-group effects on these outcomes during survival, but were limited by sample size. Conclusions: The efficacy of interventions using distance approaches in the cancer setting is still not wellestablished. Further research should be conducted through well-designed studies with more interactive features that minimize the lack of face-to-face interaction.