Percorrer por autor "Neves, Maria Carolina"
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- Assessing fear of cancer recurrence among adolescents and young adults: the portuguese validation and psychometric assessment of the “Fear of Cancer Recurrence 7” scalePublication . Neves, Maria Carolina; Sales, Célia; Oliveira, Joana; Bártolo, Ana; Prins, Judith; Monteiro, SaraIntroduction: Adolescents and young adults with cancer experience high levels of fear of cancer recurrence (FCR), negatively impacting their lives. However, no measure has been validated worldwide to assess FCR levels among these young people. This study aims to validate the FCR7, a scale that measures FCR, for the Portuguese population of adolescents and young adults. Methods: Ninety-two participants were recruited online. They were primarily women (83.7%) with a mean age of 26.01 years at recruitment and 19.38 years at cancer diagnosis, with a variety of cancer diagnoses and previous treatments. Most participants were no longer under active treatment (75%), and approximately 75.1 months had passed since their diagnosis. Fear of cancer recurrence, anxiety and depression levels, and quality of life were as-sessed.Results: The results showed that FCR7 has good model fit and reliability. Concurrent and divergent validity were also confirmed, with FCR being posi-tively related to anxiety and negatively associated with quality of life. A cut-off score was found, discriminating between clinical and non-clinical levels of FCR. Almost 70% of the participants experienced clinical levels of FCR. We conclude that FCR7 is a valid unidimensional scale to assess FCR levels among Portuguese adolescents and young adults. Conclusion: More research should be conducted to validate FCR measures to be used among adolescents and young adults across the globe. The existence of a valid and brief measure to assess FCR among this population in Portugal is an asset for national health professionals and researchers.
- Fear of cancer recurrence, distress, and quality of life in adolescent and young adult cancer survivorsPublication . Oliveira, Joana; Neves, Maria Carolina; Bártolo, Ana; Sales, Célia; Monteiro, SaraAdolescents and young adult cancer survivors often experience high levels of fear of cancer recurrence (FCR), which significantly impacts their emotional well-being and quality of life. The lack of studies on this target population in Portugal leads to a gap of knowledge that informs the development of interventions and solutions aimed at AYA cancer survivors. This study aimed to analyze the moderating effect of FCR on the relationship between emotional distress and quality of life in AYA surviving cancer. This is a cross-sectional study including 96 participants between the ages of 15 and 25 at the time of diagnosis. Sociodemographic, clinical, and psychosocial characteristics were collected through a sociodemographic and clinical questionnaire, the FCR7 scale, the Hospital Anxiety and Depression Scale (HADS), and the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire Core-30 (EORTC QLQ-C30). We analyzed correlations between FCR and clinical, sociodemographic factors and tested the direct and indirect relationships between FCR, distress, and quality of life. The results indicated that high levels of FCR were associated with lower emotional functioning, and gender was the only sociodemographic variable significantly associated with FCR. Although anxiety was found to influence emotional functioning in AYAs, FCR did not moderate the relationship between anxiety and emotional functioning. This study allows us to gain more knowledge about the psychological impact of the disease on this population.
- Informed consent and adolescents with cancer: challenges and tools in online studiesPublication . Neves, Maria Carolina; Monteiro, Sara; Prins, Judith; Sales, Célia
- Taking care of an adolescent and young adult cancer survivor: a systematic review of the impact of cancer on family caregiversPublication . Neves, Maria Carolina; Bártolo, Ana; Prins, Judith B.; Sales, Célia; Monteiro, SaraResearch usually investigates adolescents and young adults (AYA) with cancer in combination with younger and older cancer patients and survivors. However, AYAs with cancer are a unique group, and their caregivers' experience may also differ from other caregivers of cancer survivors. This systematic review aims to understand the impact of a cancer diagnosis on family caregivers, comparing the experience of caregivers of AYA childhood cancer survivors (AYA CCS) and caregivers of AYA with cancer. Relevant studies were identified through PubMed, Scopus, and Web of Science databases, and their quality was assessed using the Joanna Briggs Institute's critical appraisal checklists. Sixteen studies (17 reports) met the inclusion criteria. Findings were synthesized separately for caregivers of AYA CCS and caregivers of AYA with cancer. Results showed that caregivers in both groups experienced high distress after the diagnosis. Partners of AYAs with cancer experienced diminished quality of life (QoL) and over half reported moderate to high fear of cancer recurrence (FCR). Findings indicated that cancer negatively impacts family caregivers, regardless of the patient's age at diagnosis. However, findings are heterogeneous, and most do not focus on QoL or FCR. More research is needed on the impact of cancer among these family caregivers.