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Validation of the Short‐Form Survivor Unmet Needs Survey in older patients with myeloma

2021Journal article Restricted access
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dc.contributor.authorPereira, M.Graça
dc.contributor.authorPereira, Marta
dc.contributor.authorVilaça, Margarida
dc.contributor.authorFerreira, Gabriela
dc.contributor.authorFaria, Sara
dc.contributor.authorMonteiro, Sara
dc.contributor.authorBacalhau, Rosário
dc.date.accessioned2022-12-12T11:23:08Z
dc.date.available2022-12-12T11:23:08Z
dc.date.issued2021
dc.description.abstractBackground: Multiple myeloma (MM) affects mainly the older population and is the second most prevalent haematologic cancer. MM patients’ unmet needs are diverse, arise at different stages, and are associated with greater psychological distress. This study examined the psychometric properties of the Short-Form Survivor Unmet Needs Survey (SF-SUNS) in Portuguese MM patients. Methods: This cross-sectional study included 213 MM patients. The internal consistency of the scale was analyzed with Cronbach’s α. Principal component analysis and confirmatory factor analysis were used to assess construct validity. Convergent validity was examined by using correlations with quality of life, satisfaction with social support, and psychological morbidity. Multiple regression analyses were conducted to explore the contribution of sociodemographic and clinical variables to unmet needs. Results: The Portuguese SF-SUNS’s factor structure follows the original’s structure, although it includes fewer items. For each domain, Cronbach’s α was ≤0.70, the minimum acceptable criterion. For construct validity, only unmet relationship and emotional needs had significant correlations (r ≥ 0.40)—specifically negative associations with quality of life and social support and positive associations with psychological morbidity. Regarding patient variables and SF-SUNS results, only cancer stage contributed significantly to unmet information needs, with patients at stage I reporting more needs than patients at stage III. Conclusions: The SF-SUNS represents a valid and reliable tool to assess unmet needs among Portuguese MM patients. It may be useful in designing and monitoring interventions to improve well-being in cancer survivors.pt_PT
dc.description.sponsorshipThis study was supportedby a grant from the Portuguese Association againstLeukaemia and the Portuguese Association of Leu-kaemias and Lymphomas.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.doi10.1111/psyg.12653pt_PT
dc.identifier.eissn1479-8301
dc.identifier.issn1346-3500 (Print)
dc.identifier.urihttp://hdl.handle.net/10400.2/12707
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.subjectMyelomapt_PT
dc.subjectPatientspt_PT
dc.subjectPsychometric propertiespt_PT
dc.subjectShort-Form Survivor Unmet Needs Surveypt_PT
dc.titleValidation of the Short‐Form Survivor Unmet Needs Survey in older patients with myelomapt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.endPage192pt_PT
oaire.citation.issue2pt_PT
oaire.citation.startPage185pt_PT
oaire.citation.titlePsychogeriatricspt_PT
oaire.citation.volume21pt_PT
person.familyNamePereira
person.familyNamePereira
person.familyNameVilaça
person.familyNameFerreira
person.familyNameFaria
person.familyNameMonteiro
person.familyNameBacalhau
person.givenNameMaria da Graça
person.givenNameMarta
person.givenNameMargarida
person.givenNameGabriela
person.givenNameSara
person.givenNameSara
person.givenNameRosário
person.identifier2326066
person.identifier.ciencia-idB716-8559-CEFC
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person.identifier.ciencia-idC61D-FF76-535D
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person.identifier.ciencia-id8B1C-87A8-3B0D
person.identifier.orcid0000-0001-7987-2562
person.identifier.orcid0000-0001-7176-3775
person.identifier.orcid0000-0002-4349-8633
person.identifier.orcid0000-0003-0993-5614
person.identifier.orcid0000-0001-9792-5816
person.identifier.orcid0000-0002-1389-3851
person.identifier.orcid0000-0001-5030-5425
person.identifier.ridA-1435-2011
person.identifier.scopus-author-id25223845300
person.identifier.scopus-author-id57055067800
person.identifier.scopus-author-id25630843100
rcaap.rightsrestrictedAccesspt_PT
rcaap.typearticlept_PT
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