Burden and quality of life of mothers of children and adolescents with chronic illnesses: an integrative review

Macedo, Eliza Cristina; Silva, Leila Rangel; Paiva, Mirian Santos; Ramos, Natália

Publication

Burden and quality of life of mothers of children and adolescents with chronic illnesses: an integrative review

2015-07Journal article

datacite.subject.sdg	03:Saúde de Qualidade	pt_PT
dc.contributor.author	Macedo, Eliza Cristina
dc.contributor.author	Silva, Leila Rangel
dc.contributor.author	Paiva, Mirian Santos
dc.contributor.author	Ramos, Natália
dc.date.accessioned	2023-04-19T10:21:52Z
dc.date.available	2023-04-19T10:21:52Z
dc.date.issued	2015-07
dc.description.abstract	Objective: to identify and analyze the evidence available regarding evaluation of burden and quality of life of mothers who are caregivers for children and adolescents with chronic illnesses. Method: an integrative review, undertaken in the electronic sources MEDLINE; Academic Search Premier; CINAHL; LILACS; SciELO and PubMed, between 2010 and 2014. Results: among the 22 documents selected, there was a predominance of convenience samples and non-experimental transversal designs, at the levels IV and III2. The caregiver burden scales used were the Zarit Burden Interview and Montgomery-Borgatta Caregiver Burden Scale-Revised along with the following instruments for evaluating quality of life: The World Health Organization Quality of Life-BREF Scale; Self-report questionnaires; The Ulm Quality of Life Inventory for Parents of chronically ill children; Asthma Caregiver Quality of Life Questionnaire; and the Nottingham Health Profile. Quality-of-life appears to be influenced in a complex and interrelated way by the physical and mental health of the mothers who are caregivers, in accordance with their level of independence, social relationships, environment, and the extent to which they see themselves as burdened. Conclusion: the revealing of the results for the evaluation of burden and quality of life of mothers who are caregivers has implications for the planning and implementation of effective interventions, by the multidisciplinary team, if they are to relieve the burden.	pt_PT
dc.description.abstract	Objetivo: identificar e analisar as evidências disponíveis sobre avaliação de sobrecarga e qualidade de vida de mães cuidadoras de crianças e adolescentes com doença crônica.Método: revisão integrativa, realizada nas fontes eletrônicas MEDLINE; Academic Search Premier; CINAHL; LILACS; SciELO e PubMed, entre 2010 e 2014. Resultados: dos 22 documentos selecionados prevaleceram as amostras de conveniência, desenhos transversais, não experimentais, nos níveis IV e III2. As escalas de sobrecarga do cuidador utilizadas foram Zarit Burden Interview e Montgomery-Borgatta Caregiver Burden Scale-Revised e os instrumentos de avaliação da qualidade de vida: The World Health Organization Quality of Life-BREF Scale; Self-report questionnaires; The Ulm Quality of Life Inventory for Parents of chronically ill children; Asthma Caregiver Quality of Life Questionnaire; Perfil de Saúde de Nottingham Health Profile. A qualidade de vida comparece influenciada de forma complexa e inter-relacionada pela saúde física e mental das mães cuidadoras, de acordo com seu nível de independência, relações sociais, ambiente e a perceção da sobrecarga. Conclusão:a revelação dos resultados de avaliação da sobrecarga e qualidade de vida das mães cuidadoras implica no planeamento e implementação de intervenções efetivas, pela equipe multidisciplinar, que aliviem a sobrecarga.	pt_PT
dc.description.sponsorship	CAPES, Brasil	pt_PT
dc.description.version	info:eu-repo/semantics/publishedVersion	pt_PT
dc.identifier.citation	Macedo, E. C., Silva, L. R. Paiva, M. S., Ramos, M. N. P. (2015). Burden and quality of life of mothers of children and adolescents with chronic illnesses: an integrative review. Revista Latino-Americana de Enfermagem (Online) v. 23, n. 4, p. 769 – 777.	pt_PT
dc.identifier.doi	10.1590/0104-1169.0196.2613	pt_PT
dc.identifier.issn	1518-8345
dc.identifier.uri	http://hdl.handle.net/10400.2/13636
dc.language.iso	eng	pt_PT
dc.peerreviewed	yes	pt_PT
dc.publisher	Universidade de São Paulo	pt_PT
dc.relation.publisherversion	https://www.scielo.br/j/rlae/a/WSGZjfM4qcmGgvV8MPv8bTs/abstract/?stop=next&lang=en&format=html#	pt_PT
dc.rights.uri	http://creativecommons.org/licenses/by-nc/4.0/	pt_PT
dc.subject	Quality of life	pt_PT
dc.subject	Physical and mental health	pt_PT
dc.subject	Caregiver overload	pt_PT
dc.subject	Caring mothers	pt_PT
dc.subject	Caregivers	pt_PT
dc.subject	Child	pt_PT
dc.subject	Adolescent	pt_PT
dc.subject	Qualidade de vida	pt_PT
dc.subject	Saúde mental e física	pt_PT
dc.subject	Sobrecarga do cuidador	pt_PT
dc.subject	Mães cuidadoras	pt_PT
dc.subject	Criança	pt_PT
dc.subject	Adolescente	pt_PT
dc.title	Burden and quality of life of mothers of children and adolescents with chronic illnesses: an integrative review	pt_PT
dc.title.alternative	Sobrecarga e qualidade de vida de mães de crianças e adolescentes com doença crónica: revisão integrativa	pt_PT
dc.type	journal article
dspace.entity.type	Publication
oaire.citation.conferencePlace	Ribeirão Preto, São Paulo	pt_PT
oaire.citation.endPage	777	pt_PT
oaire.citation.issue	4	pt_PT
oaire.citation.startPage	769	pt_PT
oaire.citation.title	Revista Latino Americana de Enfermagem	pt_PT
oaire.citation.volume	23	pt_PT
person.familyName	MACEDO
person.familyName	Ramos
person.givenName	ELIZA CRISTINA
person.givenName	Natália
person.identifier.ciencia-id	B61A-FEE0-B2CE
person.identifier.ciencia-id	DA15-2790-33C3
person.identifier.orcid	0000-0001-8824-9107
person.identifier.orcid	0000-0002-8448-1846
person.identifier.scopus-author-id	56769281700
rcaap.rights	openAccess	pt_PT
rcaap.type	article	pt_PT
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