Quality of life in caregivers of patients with multiple myeloma

Pereira, M. Graça; Vilaça, Margarida; Pinheiro, Marisa; Ferreira, Gabriela; Pereira, Marta; Faria, Sara; Monteiro, Sara; Bacalhau, Rosário

Publication

Quality of life in caregivers of patients with multiple myeloma

2019Journal article

dc.contributor.author	Pereira, M. Graça
dc.contributor.author	Vilaça, Margarida
dc.contributor.author	Pinheiro, Marisa
dc.contributor.author	Ferreira, Gabriela
dc.contributor.author	Pereira, Marta
dc.contributor.author	Faria, Sara
dc.contributor.author	Monteiro, Sara
dc.contributor.author	Bacalhau, Rosário
dc.date.accessioned	2023-07-12T16:53:25Z
dc.date.available	2023-07-12T16:53:25Z
dc.date.issued	2019
dc.description.abstract	Objectives: This study aimed to assess the relationship between sociodemographic, clinical, and psychological variables with quality of life (QoL) and the moderating role of caregivers’ age and caregiving duration in caregivers of patients with Multiple Myeloma. Method: The sample included 118 caregivers who completed questionnaires that assessed psychological morbidity, satisfaction with social support, coping, burden, unmet needs, and QoL. Results: High psychological morbidity, burden and information, financial and emotional unmet needs were associated with lower QoL, while higher satisfaction with social support and more effective use of coping strategies were associated with better QoL. Women caregivers reported more satisfaction with social support and those who did not choose to care reported greater financial unmet needs and more use of coping strategies. The relationship between caregivers’ psychological morbidity/social support and QoL was mediated by emotional needs and double mediated by coping and burden. The caregivers’ age moderated the relationship between psychological morbidity/social support and emotional needs. Conclusion: Interventions to support the caregiver’s emotional needs to promote their QoL are needed. These should be particularly tailored for older caregivers reporting greater psychological morbidity and younger caregivers less satisfied with their social support, as they have a negative indirect impact on their QoL.	pt_PT
dc.description.sponsorship	This study was supported by a grant from the Portuguese Associations of Portuguese Association against Leukemia and the Portuguese Association of Leukemias and Lymphomas.	pt_PT
dc.description.version	info:eu-repo/semantics/publishedVersion	pt_PT
dc.identifier.doi	10.1080/13607863.2019.1617240	pt_PT
dc.identifier.eissn	1364-6915
dc.identifier.issn	1360-7863
dc.identifier.uri	http://hdl.handle.net/10400.2/14370
dc.language.iso	eng	pt_PT
dc.peerreviewed	yes	pt_PT
dc.rights.uri	http://creativecommons.org/licenses/by/4.0/	pt_PT
dc.subject	Caregivers	pt_PT
dc.subject	Multiple myeloma	pt_PT
dc.subject	Unmet needs	pt_PT
dc.subject	Quality of life	pt_PT
dc.title	Quality of life in caregivers of patients with multiple myeloma	pt_PT
dc.type	journal article
dspace.entity.type	Publication
oaire.citation.endPage	1410	pt_PT
oaire.citation.issue	9	pt_PT
oaire.citation.startPage	1402	pt_PT
oaire.citation.title	Aging & Mental Health	pt_PT
oaire.citation.volume	24	pt_PT
person.familyName	Vilaça
person.familyName	Monteiro
person.familyName	Bacalhau
person.givenName	Margarida
person.givenName	Sara
person.givenName	Rosário
person.identifier	2326066
person.identifier.ciencia-id	F41E-48B8-CDAD
person.identifier.ciencia-id	4C18-1369-EB51
person.identifier.ciencia-id	8B1C-87A8-3B0D
person.identifier.orcid	0000-0002-4349-8633
person.identifier.orcid	0000-0002-1389-3851
person.identifier.orcid	0000-0001-5030-5425
person.identifier.scopus-author-id	25630843100
rcaap.rights	restrictedAccess	pt_PT
rcaap.type	article	pt_PT
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