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CanCOGĀ®: cultural adaptation of the evidence-based UCLA cognitive rehabilitation intervention program for cancer survivors in Portugal

dc.contributor.authorOliveira, Ana F.
dc.contributor.authorSosa-Napolskij, Milaydis
dc.contributor.authorTorres, Ana
dc.contributor.authorQueiroz, Diâner Felipe
dc.contributor.authorBƔrtolo, Ana
dc.contributor.authorSousa, Helena
dc.contributor.authorMonteiro, Sara
dc.contributor.authorVan Dyk, Kathleen
dc.contributor.authorErcoli, Linda M.
dc.contributor.authorSantos, Isabel M.
dc.date.accessioned2023-07-24T07:09:29Z
dc.date.available2023-07-24T07:09:29Z
dc.date.issued2023
dc.description.abstractCognitive difficulties are highly prevalent and negatively impact cancer survivors' quality of life. The UCLA Cognitive Rehabilitation Intervention Program (in short, UCLA program) is an evidence-based intervention developed and tested in the US to address the cognitive complaints of cancer survivors. Since there are no cognitive rehabilitation programs available for Portuguese cancer-related settings, this study aimed to culturally adapt the UCLA program to Portugal. Nine steps were implemented for this cultural adaptation: needs assessment, initial contacts, translation, cultural adaptation, independent review by a panel of experts (n = 6), focus group discussions with cancer survivors (n = 11), systematization of inputs and improvement of the final materials, fidelity check, and preliminary acceptability assessment. The findings suggested that changes to the original materials were needed. A Portuguese name, "CanCOG®-Reabilitação Cognitiva no Cancro" (in English "CanCOG®-Cognitive Rehabilitation in Cancer"), and a logo were created to make it more memorable and appealing for the Portuguese population. The language was adjusted to ensure content accessibility and semantic and conceptual equivalence. Finally, references to several cultural aspects, such as habits, customs, and traditions, were adapted to fit the new cultural context. The UCLA program may be a promising tool to help alleviate the cognitive difficulties reported by cancer survivors in different cultural contexts. Future research is needed to confirm the feasibility, acceptability, and preliminary efficacy of its Portuguese version, "CanCOG®-Reabilitação Cognitiva no Cancro".pt_PT
dc.description.sponsorshipThis research was supported by National Funds through FCT—Fundação para a CiĆŖncia e a Tecnologia, I.P. (http://www.fct.pt/ accessed on 21 October 2022), within CINTESIS R&D Unit (reference UIDB/4255/2020 and UIDP/4255/2020), WJCR R&D Unit (reference UIDB/04810/2020), and within the scope of the project RISE (LA/P/0053/2020). A.F.O. is supported by National Funds through the FCT, within a PhD fellowship (SFRH/BD/138785/2018).pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.doi10.3390/healthcare11010141pt_PT
dc.identifier.urihttp://hdl.handle.net/10400.2/14566
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/pt_PT
dc.subjectCancerpt_PT
dc.subjectCancer survivorspt_PT
dc.subjectCancer-related cognitive impairmentpt_PT
dc.subjectCognitive rehabilitationpt_PT
dc.subjectCultural adaptationpt_PT
dc.titleCanCOGĀ®: cultural adaptation of the evidence-based UCLA cognitive rehabilitation intervention program for cancer survivors in Portugalpt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.issue1pt_PT
oaire.citation.startPage141pt_PT
oaire.citation.titleHealthcarept_PT
oaire.citation.volume11pt_PT
person.familyNamePereira BƔrtolo
person.familyNameMonteiro
person.givenNameAna ClƔudia
person.givenNameSara
person.identifier.ciencia-id0E1F-D02A-6DFF
person.identifier.ciencia-id4C18-1369-EB51
person.identifier.orcid0000-0002-0817-0157
person.identifier.orcid0000-0002-1389-3851
person.identifier.scopus-author-id25630843100
rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT
relation.isAuthorOfPublicatione90272ca-89fd-48d0-8d21-6c8e6814be53
relation.isAuthorOfPublicationcaeaf2d9-c174-4307-953f-d6466ab9dd65
relation.isAuthorOfPublication.latestForDiscoverycaeaf2d9-c174-4307-953f-d6466ab9dd65

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